Please watch this video on YouTube. I've been suffering with ME/CFS for nearly 2 years now and I'm happy that they are saying its NOT in my head. This brings me new hope that a cure will be found. :) http://www.youtube.com/watch?v=hkGq0BH6AHw
6 comments:
Anonymous
said...
What's ME? I understand the CFS part 'cause CFS is a complication of the neurological condition I have, reflex neurovascular dystrophy.
Its the other name for CFS. Basically they (health professionals) can't make their mind up as what to call the condition we have. It started of being called M.E. (Please google it for full name) in the late nineties they gave it a new name. This info I've gotten of the web from various sites/blogs. How bad have you got CFS? Mine sprung up out of the blue (which is strange for this). One day I was fine, the next I wasn't. I'm not bed ridden but I can't work. I shall google reflex neurovascular dystrophy. I would like to find out more.
Just wanna say that my doc pretty much said that I have this but just won't commit. It can't be anything else though. The symptons just don't fit anything else. I'm on a REALLY long waiting list to see a "specialist" that should confirm everything.
I'd just like to say that despite the media's insistence I have always believed ME/CFS to be very real and very serious. While I don't suffer from it myself I have known people that do and I think it's an outrage that they can't get the medical help and attention that they deserve. All I can say is that I hope you do recover Jelibe, but in the meantime keep up with the crafting and the games (maybe housework too!) :)
LOL, I do try and do some housework, lol. I'm chief washer upper in my house. I've got a Jack Daniels barstool to sit on whilst doing it too. O and I do the dusting!! I can't hoover though cause the dyson is quite heavy after a bit! I do try :) TY for your kind words and support. Much appreciated :)
6 comments:
What's ME? I understand the CFS part 'cause CFS is a complication of the neurological condition I have, reflex neurovascular dystrophy.
Its the other name for CFS. Basically they (health professionals) can't make their mind up as what to call the condition we have. It started of being called M.E. (Please google it for full name) in the late nineties they gave it a new name. This info I've gotten of the web from various sites/blogs. How bad have you got CFS? Mine sprung up out of the blue (which is strange for this). One day I was fine, the next I wasn't. I'm not bed ridden but I can't work. I shall google reflex neurovascular dystrophy. I would like to find out more.
Just wanna say that my doc pretty much said that I have this but just won't commit. It can't be anything else though. The symptons just don't fit anything else. I'm on a REALLY long waiting list to see a "specialist" that should confirm everything.
I'd just like to say that despite the media's insistence I have always believed ME/CFS to be very real and very serious. While I don't suffer from it myself I have known people that do and I think it's an outrage that they can't get the medical help and attention that they deserve. All I can say is that I hope you do recover Jelibe, but in the meantime keep up with the crafting and the games (maybe housework too!) :)
LOL, I do try and do some housework, lol. I'm chief washer upper in my house. I've got a Jack Daniels barstool to sit on whilst doing it too. O and I do the dusting!! I can't hoover though cause the dyson is quite heavy after a bit! I do try :)
TY for your kind words and support. Much appreciated :)
It's totally not in your head! My roomie in university had it and I saw how terrible it was! I hope you feel better!
-Liquidkarma (kristen)
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